A CPS post.
It’s been two and a half years of living with chronic pain. There have been times I have had a handle on it and times it has got the better of me. But one thing is for sure, its going nowhere.
In that time I have learned that management is the key to surviving high levels of nerve pain. There has been little improvement in the pain levels. If anything it has evolved. Spreading to different areas of my body as new symptoms appear to test me.
I chased up a neurologist appointment this week and it seems my case was forgot about after my assessment in march. That’s 8 month’s wasted that I could have had my follow up appointment to discuss multiple sclerosis as a diagnosis. 8 month’s that I could have been getting the right help. My phone call has got the ball rolling and I’m back in the system. It’s a frustrating place of limbo to say the least.
I have been proactive this year in dealing with past trauma in the hope that lower stress levels get my pain levels down. It’s definitely been beneficial if not painful at times.
New symptoms concern me but I have no where to discuss them. With month’s between appointments I am left to deal with them the best I can. I have also recently been diagnosed with type 2 diabetes. Just another problem to understand and deal with.
Meditation is my first point of management. Pregabalin, baclofen and amatriptalyne are the meds I have settled on. They don’t take the pain away but they allow me to function and deal with every day life. Which is anything but normal with triplet toddlers.
I feel like I’m up against it, sometimes on a daily basis. With central pain syndrome it’s all about living along side the monster and not letting it take the wheel. Not always easy.
I apologise if this seems like a bit of a whinge. I have ups and downs on this journey and positivity comes and goes. Sometimes it’s just tough going and I’m tired of hurting.