Over the last year I have been working on a new book. In it I share my experience with central pain syndrome, from when it began to a diagnosis.
The purpose of this book is to raise awareness and give a sufferers perspective of a rare neurological disorder. It explains the connection between pain and stress and also offers a solution to dealing with the pressures involved with living with a chronic pain condition.
The following is taken from my new book, currently titled ‘On Fire – An early journey with CPS’. (Available early 2021)
‘It also felt like I had finally grown to manage my symptoms with less of a sense of negativity. It is easy to fall into a trap of resentment, which I had done over and over again.
The monster was a part of me I could not evict, he was well and truly here to stay, and whatever else may be happening with me health wise, I saw it as my job to live alongside him without holding anger towards him.
I had also stopped feeling so victimised in my situation. Having CPS is bizarre. It takes everything from you, from friends to your livelihood. It is like living with a vacuum that sucks everything worthwhile into it and leaves the sufferer with a draining sense of loss and fear.
It almost felt as if I had to start my life again. From scratch, and in a way I did. I had to learn to accept my limitations, which I eventually did, and a sense of peace came from giving up fighting it.’
My first publication ‘From triples to triplets’ is available now on Amazon.